In a candid interview with PEOPLE, actress Jackie Tohn, known for her role in “Nobody Wants This,” revealed the transformative decision she made regarding her health. At 45, Tohn underwent a preventive double mastectomy after testing positive for the BRCA1 gene, a decision influenced by her family’s history with cancer.
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Tohn first became aware of her genetic risk after her father was diagnosed with metastatic carcinoma in January 2025. Upon receiving the news of his BRCA1 positive status through hereditary genetic testing, Tohn learned she had a 50% chance of carrying the same gene. During her subsequent mammogram, she mentioned her father’s positive result, a moment that shifted the tone of her medical evaluation dramatically.
“I remember leaving my mammogram appointment and casually mentioning, ‘Oh yeah, my dad’s BRCA1 positive.’ The radiologist’s reaction was instant and serious,” Tohn recounted. This prompted her physician to recommend immediate genetic testing, which ultimately revealed she was indeed BRCA1 positive. The genetic counsellor informed her that she faced an 85% likelihood of developing breast cancer and a 65% chance of ovarian cancer.
Faced with this daunting diagnosis, Tohn felt the weight of the situation bearing down on her. “You get this diagnosis and it’s overwhelming. You wonder, ‘How do I cope with this?’” she said. Nevertheless, she adopted a proactive approach, leading her to explore preventive surgery options.
In the months that followed, Tohn embarked on a challenging journey to find a suitable medical team. Embracing her situation with humour, she responded to the impending surgery by proclaiming, “Ta-ta, Jackie’s tatas!” as she planned a light-hearted farewell celebration for her breasts, aptly themed “Boob Voyage.” She invited friends and colleagues, creating a jovial atmosphere in the face of an intimidating medical procedure.
Ultimately, Tohn underwent her double mastectomy and breast reconstruction in December 2025. Throughout the ordeal, she leaned on her strong support network, which included connections with other women who had faced similar challenges. Describing them as her “BRCA gurus,” she appreciated the care package they provided, which helped ease her recovery.
Despite the difficulties of recovery, Tohn quickly realised that her decision had been the right one. “It’s astonishing; after the surgery, they discovered precancerous cells in my pathology report. There were multiple areas that could have developed into serious concerns,” she said, sharing how her doctor expressed relief and gratitude, affirming, “We did it. We saved your life.”
Reflecting on her experience, Tohn expressed a mix of disbelief and pride in her decision to take such proactive steps for her health. “It feels odd to say I saved my own life, but it’s true. This surgery was a gift. While it’s uncomfortable to express self-affirmation, I am strong and I can handle difficult things,” she explained.
Since her surgery, Tohn has begun working with Myriad Genetics to advocate for genetic testing, especially for individuals with a family history of cancer or those of Ashkenazi Jewish descent, as she is. “No one had ever spoken to me about genetic testing before my father’s diagnosis. It’s crucial that we address this issue,” she urged.
Tohn emphasised the simplicity of genetic testing, likening it to “spitting in a tube.” She passionately encourages others with concerning family histories to get tested, as it can be a critical step in proactive health management.
As she prepares for the next stage of her health journey with a planned oophorectomy—scheduled likely by the end of this year—Tohn remains reflective and emotionally charged. “Taking charge of my health has fundamentally changed my life,” she concluded, sharing her hope that her story will inspire others to take similar steps in safeguarding their futures.