2 Brothers May Only Have Years Left Before Mom’s Rare Disease Kills Them, Too. They’re Not Going Quietly (Exclusive)

**Brothers Raise Awareness for Rare Dementia After Mother’s Tragic Passing**

Jordan and Cian Adams, two brothers from Redditch, are taking significant strides in raising awareness and funding towards research for frontotemporal dementia (FTD), a condition that claimed the life of their mother, Geraldine Adams, at the age of 52. With a staggering 99.9% probability of developing the same rare form of dementia themselves, the brothers have turned their personal tragedy into a mission to make a difference.

Their foundation, FTD Brothers, established in 2025, has already garnered nearly $4 million in donations through a series of ambitious endurance events. Their popularity has surged on social media platforms, with over one million followers actively engaging with their cause. “We’re using our time to make as much noise as possible,” Cian remarked in a recent interview.

Their most notable stunt took place during the London Marathon on April 26, when Jordan completed the 26.2-mile race while carrying a 55-pound fridge on his back. “I received a few puzzled looks, but it was all part of the plan to draw attention to FTD,” he explained. Initially concerned that his unconventional burden might lead to injury, brother Cian admitted that the stunt proved to be a clever way to engage the public.

Frontotemporal dementia manifests as a neurodegenerative illness that disrupts personality, speech, and mobility. Currently, there is no cure for the disease, which is believed to affect hundreds of thousands globally, including high-profile cases such as that of actor Bruce Willis. The Adams brothers have both faced their family’s grim legacy, having lost their mother to the condition after she began displaying concerning changes in behaviour and cognitive function back in 2008.

Recalling their upbringing, the brothers described a nurturing childhood filled with love, courtesy of Geraldine and their father. However, life took a turn when Geraldine was diagnosed with FTD at the age of 47, leading to a slow deterioration that culminated in her passing in 2016. “I struggle to remember the good times when she was healthy,” Cian admitted, reflecting on their family’s heartbreaking experience.

As the family delved into genetic testing to understand their predisposition to the illness, they discovered that Jordan carried the gene mutation in 2018, while Cian received the same distressing news in 2023. Their older sister, Kennedy Frampton, tested negative. “There’s a sense of survivor’s guilt when we learned that it was just us,” she expressed, mentioning the weight of the reality they now face; one day, she may be the sole survivor of their immediate family.

Adding to their emotional challenges, Jordan and his wife Agnès learned they were expecting a child shortly after his diagnosis. However, genetic testing revealed that the fetus had inherited the FTD mutation, leading to the heart-wrenching decision to terminate the pregnancy, which Jordan described as the “most difficult decision of our lives.” He noted, “We understand that this decision may not resonate with everyone, but we believed it was in the best interest of the child.”

Undeterred by their prognosis, the brothers sought to carve a path of meaningful change. Jordan made the bold decision to leave his job in design and painting to focus full-time on advocacy through their foundation. Meanwhile, Cian, a physical therapist, lends his support as best as he can, even assisting his brother with recovery massages.

“Building a legacy that can endure beyond the grasp of dementia is paramount to me,” Jordan stated firmly. Both brothers are determined to create a lasting impact, viewing their situation as an opportunity to reclaim control over their lives rather than succumb to despair. Cian expressed a similar sentiment, saying, “I didn’t want to perpetuate the trauma across generations.”

Their journey demonstrates not only resilience in the face of adversity but also a profound commitment to raising awareness for a disease that affects countless families. As they prepare for future challenges — including an upcoming trek up Mount Kilimanjaro — the brothers remain steadfast in their mission, using their story to inspire hope and drive critical research for FTD.

Through their athletic feats and advocacy, Jordan and Cian Adams are not just honouring their mother’s memory; they are transforming their journey of grief into a crusade for change, ensuring that their voices are heard loud and clear.