Brooke Eby Shows 4 Years of ALS Progression by Compiling Footage from Her Annual Awareness Month Messages

**TikTok Star Shares Journey with ALS in Support of Awareness Month**

As May is recognised as ALS Awareness Month, TikTok influencer Brooke Eby is sharing her personal journey with the neurodegenerative disease, which she was diagnosed with in 2022 at the age of 33. The 37-year-old has gained a following of over 284,000 supporters on TikTok, where she candidly documents her experiences and the progression of her condition while maintaining a sense of humour.

In a recent video, Eby compiled clips from previous years, inviting her followers to ask questions about amyotrophic lateral sclerosis (ALS). Each segment reflects her journey over the years, showcasing her transition from sharing initial thoughts in May 2023 to discussing her ongoing challenges in 2026. The final clip featured a lighthearted photo of Eby in a wheelchair, sporting sunglasses and a breathing device, a stark reminder of her condition but presented with her trademark wit.

Brooke’s unique approach to sharing her story allows viewers to engage with her experiences in a relatable manner. She began documenting her life with ALS shortly after her diagnosis, and her videos have become not only a source of support for herself but also an educational platform for her audience. Eby’s reflections capture the realities of living with a terminal illness while also highlighting the importance of awareness and understanding of ALS.

Throughout the years she has shared content, Eby has developed a series of phrases that signify her willingness to discuss her illness openly. In her early videos, she often spoke about her diagnosis and the impact it had on her life. As the years have progressed, her reflections have become deeper, capturing the complexities and challenges that accompany living with ALS.

In early 2023, Eby shared that she had begun experiencing bulbar symptoms, which have greatly affected her ability to swallow and speak clearly. In a humorous take, she remarked on the difficulty of the term “bulbar,” questioning why it was necessary for such a complex word to describe speech disturbances, and inviting her followers to try saying it quickly multiple times. This lightheartedness has resonated with many of her supporters, demonstrating her ability to find humour even in challenging circumstances.

In one of her recent updates, Eby described the physical difficulties she now encounters, such as choking while eating and the impact of weakened core muscles on her ability to cough or clear her throat. She likened the feeling to trying to swallow a spoonful of peanut butter that simply wouldn’t go down, illustrating her struggles in a way that is both relatable and impactful. Despite the challenges, she maintains that she is still able to eat through her mouth, although she has made adjustments to her diet to accommodate her new reality.

Moreover, in addressing her speech changes, Eby commented that while she is not “fully slurring,” she takes longer to articulate her thoughts, demonstrating the condition’s progression on her life. Her candidness about these experiences sheds light on the everyday realities faced by individuals living with ALS, encouraging her followers to gain a better understanding of the disease.

Brooke Eby’s journey through ALS is a poignant reminder of the resilience of the human spirit. By sharing her experiences and humour on social media, she has created a community that fosters support, understanding, and awareness of this often-misunderstood condition. As she continues to document her life, Eby not only advocates for herself but also for countless others affected by ALS, striving to bring attention to the need for research and support for those battling similar challenges.

In conclusion, Eby’s dedication to raising awareness during ALS Month has not only helped her cope with her diagnosis but has also empowered her followers to learn more about the disease. Through her videos, she invites not only questions but also compassion and empathy, bridging the gap between those living with the condition and the wider community. Brooke Eby’s journey is both an inspiration and a call to action, reminding us all of the importance of awareness, humour, and support in the face of adversity.