Charlotte Figi Was a Face of the Medical Marijuana Movement. 5 Years After Her Death, Her Mom Is Still Fighting (Exclusive)

Paige Figi Reflects on Life 5 Years After Losing Daughter Charlotte

Five years have passed since the tragic death of Charlotte Figi, a young girl who captured the world’s attention as a face of the medical marijuana movement. Charlotte’s mother, Paige Figi, has recently opened up in an exclusive interview with PEOPLE, reflecting on her journey of grief, resilience, and advocacy.

Charlotte Figi’s story began when she started experiencing severe seizures at just 3 months old. Despite numerous medical interventions, it took until she was 2 ½ years old to be diagnosed with Dravet syndrome, a severe form of epilepsy. The diagnosis brought a harsh reality to Paige and her family – children with Dravet’s typically do not survive into adulthood.

Paige tirelessly searched for alternative treatments and came across a high-CBD, low-THC hemp extract that showed promise in reducing seizures. Despite initial doubts, the extract, later named Charlotte’s Web, had a life-changing impact on Charlotte. Her seizures reduced significantly, and she began to experience a better quality of life.

The success of Charlotte’s treatment led to a public discussion about medical marijuana. Paige, who had faced scrutiny for her choices, found herself at the center of a media storm. Despite the attention, she remained focused on advocating for her daughter and others in similar situations.

In the years that followed, Paige continued to be a vocal advocate for access to medical marijuana. She played a crucial role in changing legislation to ensure that families in need could access the treatment they required. Paige’s efforts not only benefitted her own family but also countless others who found hope in Charlotte’s story.

Tragedy struck in 2020 when Charlotte passed away at the age of 13 from an upper respiratory illness. Despite their preparedness due to Charlotte’s condition, Paige and her family were devastated by the loss. The challenges of grieving during a global pandemic added to their sorrow.

Paige’s other children, Chase and Maxwell, also felt the impact of Charlotte’s passing. They became caretakers and developed empathy and compassion beyond their years. The family found solace in sharing memories of Charlotte and supporting each other through their grief.

In honour of Charlotte’s memory, Paige has continued her advocacy work. She remains dedicated to ensuring access to treatments like Charlotte’s Web for those in need. Additionally, she has purchased a ranch with a vision of providing respite for families facing medical challenges, a place where they can find support and solace.

Paige’s resilience and determination have left a lasting impact on those around her. By sharing Charlotte’s story and advocating for change, she has shown the power of a mother’s love and the impact one individual can have on the world. Charlotte’s legacy lives on through Paige’s work and the lives she continues to touch.