A mother from Portland, Oregon, is using social media to share her experiences of living with Amyotrophic Lateral Sclerosis (ALS) in an effort to connect with others and dispel common misconceptions about the disease. Angela “Angie” Quandt, a mother of six, became increasingly concerned when she began to notice troubling symptoms, including a dragging left foot and frequent falls.
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After months of uncertainty and a protracted wait for a specialist appointment, Quandt was ultimately diagnosed with ALS in September 2022. Throughout this time, she had undergone MRIs and CT scans which returned inconclusive results. When she finally did get to see a neurologist, the diagnosis was not only unexpected but also devastating: the doctor informed her that she may have only two to five years to live.
The initial response to her diagnosis was one of shock, particularly as it meant facing the possibility of missing crucial milestones with her family. “I’ve always been the mom who was there for everything,” Quandt reflected, describing the emotional turmoil of coming to terms with her condition. Although she continued to enjoy family outings shortly after her diagnosis, the reality of ALS gradually began to impact her daily life.
As her symptoms progressed, she struggled with the loss of independence. “One of the hardest parts of living with ALS is adjusting to each new loss of independence,” she said. Initially resistant to using a cane, walker, or wheelchair, Quandt admitted that accepting her need for mobility aids felt like acknowledging a harsh reality.
Adjusting to the practical challenges posed by ALS has been a constant process for Quandt. She has had to adapt not only in terms of physical mobility, but also regarding everyday tasks like swallowing and navigating her home. While many focus on the physical symptoms, she highlights the often-overlooked emotional impact of such losses. “I was used to being the person everyone could rely on, so it has not been easy for me to ask anyone for help,” she explained.
In her journey, Quandt aims to counter the misconception that ALS alters a person’s identity. “It changes what I can physically do, but it doesn’t change me,” she emphasised. “I’m still the same person. I’m still a mom, grandma, wife, sister, and friend.” Through her candid social media presence, she fosters a sense of community and connection with others grappling with similar challenges.
Among those who have inspired her is Brooke Eby, another individual diagnosed with ALS. Quandt revealed that she finds strength in the stories of others who document their experiences and struggles. “If my story can help someone feel a little less alone, then it is totally worth sharing,” she stated, highlighting the importance of mutual support in the face of adversity. “When you’re diagnosed with a disease like ALS, it can feel very isolating.”
Despite the uncertainties surrounding her health, Quandt remains optimistic, concentrating on the joy her family brings her. With a devoted husband of over 30 years, six children, and four grandchildren—plus another grandchild on the way—she finds many reasons to keep smiling even on difficult days. “My family and friends, without a doubt, keep me laughing, keep me involved, and give me plenty of reasons to get out of bed,” she noted.
Looking ahead, Quandt expresses a desire to continue creating memories with her loved ones. “I do know that there are still memories to make, milestones to celebrate, and people I love to spend time with,” she said. Her strength and love for her family motivate her ongoing journey, as she reassures her children that life will go on even if she is not physically present someday. “I hope they know I’ll always be with them,” she added poignantly.
In sharing her story, Angela Quandt not only sheds light on the realities of living with ALS, but also fosters hope and understanding for those who may find themselves in similar situations. Through her courage and resilience, she reminds us of the enduring power of family and connection in the face of life’s challenges.