Carrie Ann Inaba Says She Lives with ‘Constant Pain’ from ‘Invisible’ Illness (Exclusive)

Carrie Ann Inaba, known for her role as a judge on the hit television show *Dancing with the Stars*, has commenced a campaign to raise awareness about Sjogren’s disease, an autoimmune condition that affects millions yet remains largely under-recognised. Inaba, 58, has been candid about the challenges she faces daily due to the illness, which causes chronic pain, fatigue, and dryness of the eyes and mouth.

Sjogren’s disease arises when the immune system mistakenly attacks the glands responsible for producing moisture. As a result, those affected often experience significant discomfort. Inaba explains, “You don’t see it on me right now, but I live with constant pain, constant dryness in my eyes and mouth, and persistent fatigue. My life is fundamentally about managing my energy.”

The television personality was diagnosed with Sjogren’s in 2013 during a particularly difficult period in her life, following the death of her father. It took considerable time and effort for her to find a doctor who could provide a diagnosis. “When I finally received the diagnosis, I felt relief,” she recalled. “I thought, ‘Okay, now I can focus my energy on addressing this’.”

Despite the invisible nature of her illness, Inaba frequently experiences flare-ups that can be debilitating. Recently, she faced a medical emergency while flying, but it was linked to severe food poisoning rather than a flare-up of Sjogren’s. Although these episodes can be distressing, Inaba acknowledges that Sjogren’s is a constant presence in her life, and she has developed strategies to deal with its effects.

Her daily routine reflects careful planning that accommodates the demands of her condition. Inaba schedules minimal activity in the days leading up to and following the taping of *Dancing with the Stars*. She shared that Sundays are typically reserved for quiet time, while Mondays may involve a fitting. “Before taping, I like to stay at home, engaging in peaceful activities. After the show, I ensure that I have a restful day,” she explained. This proactive approach to managing her health has proven beneficial, allowing her to regulate her stress levels.

As a part of her efforts to advocate for those with Sjogren’s disease, Inaba has collaborated with pharmaceutical company Novartis on their Sjout for Sjogren’s campaign. This initiative aims not only to provide resources and support for individuals managing the disease but also to educate the public on the condition—starting with its pronunciation (it is pronounced “Show-grins”). The campaign directs people to a website featuring tools, doctor referrals, and vital information regarding effective management of the condition.

Despite the challenges posed by Sjogren’s, Inaba is determined to spread hope and support among those affected. She recognised that while there are no FDA-approved treatments to cure the disease, supportive care plays a crucial role in managing symptoms. “It’s about managing what you feel,” she said, expressing optimism about how her story can assist others dealing with similar struggles.

Over time, Inaba’s perception of her condition has shifted, marked by a sense of melancholy over the aspects of life she feels have been taken from her. “I’ve experienced the loss of friendships, a social life, and the ability to engage in relationships owing to my limited energy,” she acknowledged. However, Inaba has resolved to foster a positive outlook amidst these challenges. “Redefining success has become essential for me,” she added, highlighting her desire to adapt and find contentment despite her health issues.

Carrie Ann Inaba’s advocacy sheds light on the often misunderstood realities of living with Sjogren’s disease. By sharing her journey, she aims to connect with others, providing a platform for discussion and understanding regarding this autoimmune condition. Her courageous openness not only raises awareness but also serves to inspire those facing similar hurdles, demonstrating the strength found in resilience and community.